An area 4-year-old was lately within the highlight at New York Vogue Week, the place she rolled down the runway to mannequin adaptive fashions.
Estelle Lemieux appeared as one in all 60 fashions on the “The Runway of Desires,” which is a one-of-a-kind adaptive style present, aptly titled “A Vogue Revolution,” introduced by Kohl’s. The seventh annual present was held on Sept. 12 at The Glasshouse in New York Metropolis.
“It was such an eye-opening expertise for her. She has by no means been uncovered to so many individuals with all various kinds of disabilities/variations. I positively suppose it has helped her to grasp and settle for her incapacity/wheelchair,” mentioned Amy Lemieux, Estelle’s mother.
Estelle, the daughter of Amy and Douglas Lemieux, has Spinal Muscular Atrophy, kind 2. She began exhibiting signs at round 6 months of age however wasn’t recognized till she was 16 months previous, because it took a very long time to get the proper analysis.
Lemieux mentioned her daughter has been fortunate to obtain all three FDA-approved therapies for the neuromuscular situation, together with the most costly drug on the planet referred to as Zolgensma at a price of $2.1 million for a course of therapy. She additionally takes day by day remedy and will get therapies to assist construct muscle and struggle in opposition to a illness that’s traditionally progressive with out therapy.
“This quick getaway to New York was an incredible distraction for her to only be a child for a number of days and take a break from her therapies. We bought to discover the town and stroll to Time Sq.. Estelle liked the hustle and bustle and good lights. We went to the M&M retailer, American Woman doll retailer, Disney, and likewise to Harry Potter. She had a blast,” her mom mentioned.
The Runway of Desires Basis is a nonprofit group with a mission of inclusion, acceptance, and alternative within the style business for folks with disabilities. The night showcased adaptive clothes and footwear from main manufacturers reminiscent of Kohl’s, Goal, Zappos.com, JCPenney, Tommy Hilfiger Adaptive, No Limbits, and Stride Ceremony. Steve Madden debuted its adaptive footwear line, alongside manufacturers French Toast Adaptive, Stemwear, and Magnetic Me, which showcased merchandise from their new adaptive collections.
Estelle bought to roll down the runway thrice and began tearing up when she realized the present was over. Since coming back from their journey, Lemieux mentioned her daughter has introduced up completely different fashions she met and says, “That’s simply the way in which their physique was made, and it’s okay to be completely different.”
Lemieux loves that Estelle is inquisitive about different folks.
“She is seeing that God makes us all distinctive. That is what’s so essential and wanted about what Runway of Desires is doing. Society wants extra publicity. Disabled folks should be seen in all areas together with style and promoting. It’s time we normalize disabilities,” she mentioned.
Lemieux tells her daughter the world could be a boring place if evyerone appeared the identical and she or he mentioned Estelle is beginning to see that, too.
“She even says it herself now. She will do something she needs to in life,” Lemieux mentioned. “We simply should do some issues just a little in a different way and that’s okay. She has such a optimistic and brilliant spirit for such a younger woman. We’re so pleased with her.”
Estelle began her modeling profession a few yr in the past. She is signed with Mannequin Membership in Boston and GAMUT Administration in New York, which is a expertise administration firm working with folks with disabilities.
The style present was not Estelle’s first modeling expertise — she’s accomplished shoots for Hasbro toys and was featured in a youngsters’s e-book referred to as “Gary’s Gigantic Dream” by Nicole Julia.
Comply with her on her Fb web page “Estelles SMAmazing journey” or on Instagram @RaisingaRaregirl.